Remember Harper? My friend Jeannie's great-nephew. Um...he's not doing very well. I got this today. Harper was home for Christmas. They did a bone marrow transplant around the first of this year - it's mostly been downhill since. There are many more updates and details to Harper's story. If you want them, email me on the side and I'll send you the information for the care page site.
I know that I'm going to go home tonight and hug and kiss my son just a few extra times.
D-day
Posted 9 minutes ago
"I would like to think that I had just the right words to describe what is happening now, but unfortunately I do not. The fact of the matter is our son is falling victim to his cancer. The last couple of weeks have indicated a failing prognosis...graph versus host disease (gvhd) has set in which gave us a glimmer of hope, scary hope, but ultimately we were thinking that if the gvhd could attack his body it would surely attack the leukemia, however, that is not what is happening. The daily lab work indicated yesterday that his blast count was at 78% on the peripheral slide, and today it has risen to 91%...prognosis-death. So even with the active graph versus host, the cancer is winning. He has been in some pain because the gvhd is attacking skin and gut cells giving him extreme diarrhea and a head to toe rash that is worse than anything I have ever seen. The doctor told us, per my request, that when hope was lost he would say...today he said.
I have asked that we be transported back to sparrow for comfort care until he takes that stairway to heaven. I am not scared for Harper but for those that remain here, like Brian, Tatum and all the grandparents. The Lord will care for my son and just maybe he will heal him on earth but certainly in heaven i know. I will not write off the possibility of a miracle, but that is the only thing that will save Harper now."
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