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Wednesday, September 10, 2008

More prayers for strength

I don't know if you remember this post or this one about my good friend (from home) Jeannie's great-nephew. I got some news about little Harper...

This came on 9/3:

"Well, those successful blood tests have wavered and life has come crashing down around Brian and I once again.
Harper had a virus around the 16th of August and the oncologist asked that we get a blood panel done just to see...10 days later they asked that we repeat it because his platelets were down from 157 to 98...we repeated the labs on the 26th and his virus was gone so I was hopeful that his counts would appear normal...unfortunately they had not gone up, so we were asked to repeat in another week...that brings us to yesterday - unfortunately his platelets are now at 55 and he is scheduled for a bone marrow biopsy on Thursday.
It is back to one day at a time and that's all we can do. The bone marrow biopsy will take a couple of days if I remember correctly so hopefully we will have the weekend to be a family. The "plan" as I recall would place Harper back at Sparrow for chemotherapy until he was in remission then he would be transported to Detroit Children's Hospital for a bone marrow transplant...a fate that is much to scary for me to discuss until I know for sure what is happening.
Harper is still very playful and happy, he is wild and crazy. I believe the worst part about this time around is that Harper is now more aware of what is happening...he is going to realize that his "life" has been taken away from him...I feel like he will miss his car (a flashy power wheels), his toy room and his sister; he is gonna want to play outside and sit by the fire with mom and dad while sissy roasts marshmallows...its just not fair to take that away from someone that has already been through so much!!!!!
The other piece of this story is that Tatum had her first day of kindergarten yesterday...bittersweet it was as I will not be there to pick her up and drop her off everyday like I had envisioned...She too is resilient and will take care of things just as she sees fit...again...one day at a time!"


And this today...

"The biopsy has confirmed a relapse, he was at 15% blast on Thursday of last week. The cards have been dealt and now we have to play it out. The plan is for Harper to have surgery on the 16th to replace his central line. We will travel to Detroit Children's Hospital for the surgery and return that same day to Sparrow were he will begin induction chemotherapy to achieve remission a second time. If all goes as familiar this process will take about 28 days at which point he will undergo another bone marrow aspiration to determine the blast count. God willing on that day he will have less than 5% blast and in fact be in remission after only one round of therapy.
From the point of remission, we head to Detroit Children's were he will receive 8 days of kick your a** chemo...this is super high dose drugs that are intended to kill your immune system completely...I don't want to speculate but I feel this is the point that Harper will start to feel the pain of toxicity. One the 9th day...or day zero as the transplant team tells it he will receive his new marrow.
The search was conducted last time to find a donor and Harper's donor is an adult female, age 35, three pregnancies, with a 10 out of 10 HLA match. God willing she has not passed or changed her mind in the last four months about being a donor. The team will transplant with 6 out of 6 match so 10 is amazing. The statistics about this woman indicate the complexity of her immune system which can all factor in to the engraphment...but the HLA typing is critical and that is on our side.
From day zero, which is simply an intense blood transfusion, the engraphment should take 21 to 35 days, all of which are spent in critical care in the BMT unit...Harper could react any number of ways...rashes, poops, fever, vomiting, or even organ failure...but for this I will not speculate...for I know that God is good and Harper is strong! I envision a response from the team at Detroit similar to our friends at Sparrow..."are you sure he is sick", "this kid looks to good to have gone through treatment", "WOW"...Harper is the strongest person I know and this will not stop him! We are after the cure now. This is it!"


Just when we think we have something awful on our plate - someone comes along with something even worse. I can't imagine what this little family is going through - Harper isn't even 2 yet!

2 comments:

  1. This just breaks my heart. Harper and his family are in my prayers.

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  2. My heart goes out to them. It is hard to get my head around something so awful happening to a tiny, helpless person. Will keep them in my prayers.

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